Day at Parliament

On 10 December, I went to parliament because the Muscular Dystrophy Campaign invited me for a special inquiry, as I am doing working experience with them (being a Trailblazer and all).

"Trailblazers joined MPs and Peers at the Houses of Parliament where an Inquiry into access to NHS specialist care for people living with rare conditions was launched today.

The Inquiry, being undertaken by the All Party Parliamentary Group for Muscular Dystrophy (APPG) will focus on access to specialist multi-disciplinary care; commissioning and funding; workforce planning and the role of care co-ordinators..."

This was a very interesting and informative panel discussion where the MPs questioned doctors/consultants who are working very hard to help people with neuromuscular conditions at top hospitals and organisations in the UK. At the end of the inquiry the MPs asked for written evidence relating to the topics discussed that have to be submitted by 3 February 2009, which hopefully I will be able to write up my evidence and send it back to the MP who is the chair of the APPG.

Afterwards in the evening my two carers and I left Parliament and walked to Westminster Bridge to look at the London Eye. As we were standing there Big Ben rang six times… It was brilliant!

Overall, the day was quite exciting and I cannot wait to help the Muscular Dystrophy Campaign further improve the conditions. Hopefully this can lead to something better…

Also, the night before I went to Parliament I dyed my hair and it looks fab!

My Hair & My New Jeans

HIYA! I’ve been doing something new lately: I been growing my hair out for the first time in my life. I haven’t cut my hair since last July, and now it’s almost up to my shoulders! This is partly b/c I wanted to see how what I’d look like, but mainly b/c I cannot find a good hairstylist like my brilliant Jenna in America (well, I can find them, but all the great places Sarah goes to get her hair done are in “The City” and don’t have wheelchair access). It’s times like these that I could at least hop and swing on walls/doorframes/signs like in a dream I once had…


In other important news, Sarah (thankfully) finally recently bought me some new jeans, 3 pair to be exact! The first are a pair of dark blue jeans by Lux (yeah I know they’re women’s jeans, but they fit great on me so bugger off) from Urban Outfitters, and a black and green pair of jeans from UNIQLO (a really wicked Japanese store) on Oxford Street. They are all skinny fit, and so stylish… And I look bloody amazing in my new jeans!