My Quality of Life

A few weeks ago, I was told the London Borough of Redbridge’s Primary Care Trust (PCT) has approved full funding for me to have in home care by carers. Subsequently, a lady from an independent care agency contacted me and did about a 4 hour detailed evaluation to see what kind of care I need at home. Then, she typed up a report adding up the cost, and sent it back to the PCT for approval. And recently the PCT approved the report and for me to have carers 24/7 at home; specifically, to have two carers in the day and two carers at night every single day of the year to care for me, due to the complexity of my needs…


This is BRILLIANT news! You have no idea what this means for me. Finally, after of over a year of fighting w/ so much bloody BS and bureaucracy, I will soon be able to get the care I deserve. It will mainly help my Mum out a lot as she has been my main carer for 22 years, especially at night b/c I’ve never been able to turn myself over and she is the one who usually turns me over all throughout night (and my health has got to point where I need to be turned every 15 minutes during the night and my wonderful Mum is the one who usually does it). Moreover, it will give me a lot more independence, and dramatically improve my quality of life.


The carers will hopefully begin working around the end of October, and I’m very optimistic that things will start to get better. I just pray that I’m able to begin doing the all the things I really want soon (once I get the carers) b/c my health is not going to get (and is not getting) any better, and I’m just bored out of my mind being stuck at home all the time not able to express myself in any shape or form. Plus, I still have so much I need to achieve in my life…