Saturday 28 July 2007

Saturday Family Night

Am about to take a shower and get dressed b/c I have to meet Kim at 13:30. Hopefully she can spend the day w/ us. Will fill you all in later.


Bye for now.

Friday 27 July 2007

Me and The BBC (Continued)

Just watched the 2012 TV debate on TV, and it was quite interesting. Sana and me were sitting in the corner on left side behind the presenter. They didn’t really show our faces, but you can the tops of our heads and the back of my wheelchair.


Check it out at: http://www.bbc.co.uk/london/content/articles/2007/07/26/2012_tv_debate_video_feature.shtml

Tell me what you think.


Great start to my life’s calling…


Auf Wiedersehen for now.

Thursday 26 July 2007

Harry Forever (Continued)

Ah, OMG! I just finished reading, “Harry Potter and The Deathly Hallows” by J. K. Rowling… IT WAS BLOODY AMAZING! GREAT, BUT SURPRISING…

Wednesday 25 July 2007

Stranger Than Fiction

Katherine, Sarah, and me just watched “Stranger Than Fiction” directed by Marc Forster, and stars Will Ferrell, Maggie Gyllenhaal, Dustin Hoffman, Queen Latifah, Emma Thompson, and Linda Hunt. Will Ferrell is so funny, and Emma Thompson’s a genius.


It’s really good, and I greatly enjoyed it. Highly recommended. ***FOUR STARS***


AdiĆ³s for now.

Monday 23 July 2007

Me and The BBC

Me and Sana just got back from an event in Stratford that BBC London was holding this evening. BBC London invited me to be in the audience at a TV debate for the London 2012 Olympics; Tessa Jowell (Olympics Minister), Lord Coe (Chairman of the Organising Committee), Ken Livingstone (Mayor of London), and some Conservative MP were there too on the panel.


Also, I got to meet w/ Tessa, who’s REALLY nice, and w/ Lord Coe, who is a right old wanker. But, I thoroughly enjoyed myself and I think Sana did as well. The BCC said they selected me to be in the audience b/c they really liked my questions I e-mailed them, so here they are:
A. What transportation measures are being planned, and will be implemented, for people with physical disabilities (wheelchairs etc) to and from the Olympic sites during the London 2012 Olympic Games? And will you put further accommodations to assist people with disabilities during the Olympic Games?

B. Will all the Olympic site/venues be entirely accessible for disabled people at the 2012 Olympic Games?

C. What are you doing to involve disabled people actively to participate before and during the London 2012 Olympic Games?

What do you think? I didn’t get to ask my Qs during the debate, but thankfully I met w/ Tessa afterwards and got to ask her my Qs then.


The 2012 TV debate airs on Thursday on BBC London, and I’ll tell you how it goes. Overall, it was a BLOODY WICKED experience, and is a BLOODY BRILLIANT start to me becoming the king of the world in PR/Advertising…

Saturday 21 July 2007

Saturday Family Night

For Saturday Family Night today I just watched some TV, as Sarah and Katherine went out. Everyone else is just doing there own thing.

Harry Forever

It’s here! The final installment of the Harry Potter series by J. K. Rowling, “Harry Potter and The Deathly Hallows,” has finally arrived! Sadly though, I have to wait until 24th July to read it b/c apparently the audio CDs are in a different warehouse then the books themselves, which really is so annoying. Oh well, I suppose I will just bury myself under my blanket and not be in contact w/ anything or anyone until 24th July… ;-)

Saturday 14 July 2007

Saturday Family Night

Saturday Family Night is postponed for tonight b/c everyone’s gone to a wedding of one of mum’s best friend’s nephew. And I am just home w/ dad and Sufian, and I’m just taking it easy listening to the Arctic Monkeys and surfing the Internet.


Au revoir for now.

Monday 9 July 2007

Dad

Today, my dad arrived from America since he was working there. I haven’t seen him in 5 months, and it’s really nice to see him. Hopefully, he’ll be staying for a while b/c he said that he’s trying to find a job closer to home here in London, as he was in America all by himself. Anyway, I hope everything works out.

Sunday 8 July 2007

Saturday Family Night

Yesterday, we didn’t really have Saturday Family Night, instead we mixed it up and had more of a Saturday Family Day: to celebrate my birthday we went to Bluewater in Kent (about an hour away), which is the largest mall in Europe. We spent the day there and it was great as it was just us mum, us four kids, and Katherine. I bought myself a REALLY nice pair of jeans from the Levi's store, but I had to return them b/c the waist of one size too small, and I’M STILL WAITING, SARAH, FOR YOU TO BUY ANOTHER PAIR FOR ME…


Later, for dinner we had the best pizza ever in nice pizza place at Bluewater. Once got home we had a BLOODY GOOD Double Chocolate Cake that Sarah got from this amazing handmade bakery place in London. All in all, I had a really good 22nd birthday. I just feel so blessed to know that such great people love me and feel blessed to have such a great life experiencing such great things, especially since the docs predicted I wouldn’t see my fifth birthday.

Thursday 5 July 2007

Birthday Bliss

TODAY IS MY 22ND BIRTHDAY! HURRAH! We are not really doing much since it is a weekday and everyone is doing their own thing. So, instead we’re going celebrate my birthday on Saturday (7 July).


Also, another reason why we’re not celebrating today is that I’m quite knackered from just getting back from Charing Cross Hospital after having to spend the night for a sleep study. And after I had a sleep study the docs said that my blood oxygen level goes really low and my breathing get fairly shallow at night due to the severity of my Scoliosis and underlying Muscular Dystrophy, and the docs said are referring me to a hospital that is the best in the country for respiratory care. Most likely they are going to put on some kind of home ventilation support to hopefully help me breathe better at night. I am very nervous about this all, but everything always works out for the best.

Tuesday 3 July 2007

Saturday Family Night

30 June 2007: On that Saturday we watched “Monsters, Inc.” directed by Peter Docter, Lee Unkrich, and David Silverman that stars John Goodman, Billy Crystal, Steve Buscemi, James Coburn, and Jennifer Tilly for Saturday Family Night.


“Monsters, Inc.” was REALLY GOOD, and we all thoroughly enjoyed it… Another great Pixar film; though sadly, Pixar was bought buy Disney, but since Steve Jobs is the main shareholder of the Disney Animation Studio hopefully they can keep up all the brilliant filmmaking. ***FOUR STARS***

Me 101

25 to 29 June 2007 – on that week I was admitted into Charing Cross Hospital to have some specialists test done and to meet with all the specialist docs I need, which I haven’t done in over 2 years. And b/c the hospital is right near Harrods in Knightsbridge and you have to go through “The City” to get there, and since it’s would be a pain to go there each time just to take one test, I requested transport to take me there. Anyway, a lot happen during than week, and I’ll do my best to tell you everything.


MONDAY, 23 JUNE: I got up around 07:00 b/c the transport was coming at 10:00 to take mum and me to Charing Cross Hospital. I wasn’t feeling too well with the damn cough and severe mucus I’ve had since October 2006 (that I’m still not recovered from, by the way), but I thought once I got some fresh air and got there I’d feel a bit better. The transport arrived at 10:00, and Sarah got up to put me into my wheelchair, which was in the hallway in front of the main entrance, so I could get into the transport vehicle.

However, the minute Sarah lifted me into my wheelchair I just couldn’t breathe, I felt like my right lung was collapsing as my heart felt like it was racing so fast that it was going explode. And I started panicking; I needed to lie down right away, but there was nowhere to lie down in the hallway, so I just made Sarah lie me down on the floor in the hallway so I could breathe.

Once I could breathe a bit better, I told Sarah to try to get me into my wheelchair again, and I told her to tilt my wheelchair almost all the way back (that made it a bit easier to breath) and I got mum and Sarah to my manually push me out to the waiting transport, since I was still having significant breathing trouble after I got back into my wheelchair.

When the driver saw me he said he wouldn’t be able to take me like this with breathing issues and being tilted and all; and he said we need to rebook transport w/ a stretcher and two-man crew.

So, mum and Sarah wheeled me back inside and laid me down. And it was such a pain to rebook transport (b/c it usually takes about 3 days to book transport), but they finally found transport that they said would pick us up later that day. The transport w/ stretcher arrived at last around 16:00, and took mum and me to Charing Cross Hospital. It was quite an “interesting” journey, as the two-man crew kept arguing w/ one another about what was the best way to get there (one had a strong Jamaican accent and one had a strong Indian accent, so you can just imagine). The driving was bad. Really bad. All through the journey I was just praying that we would get there safely.

Thankfully, we arrived alive, and we got to our room at the ward on the tenth floor around 18:15. Once I was settled into my bed a nurse came and took my stats etc. When the time came to take blood, my veins decided to hide, as did my pulse. She looked at me and I told her, “Yeah…it’s probably that vampire bite from last summer.”

We waited for an eternity for the night doctor to see me. Finally at 22:30 she came and took a detailed medical history. It was a bit difficult to understand her because she had a very strong accent, which I couldn’t quite place. She then insisted that they would have to take blood at some point. In the morning, she tried. The veins disappeared again, so she tried my left foot. No luck. Then she tried the right foot three times. The fourth time, my foot forced my veins to the front kicking and screaming, but the veins had the last laugh because the one she got…uh…burst. Then, quite casually, she said, “If I can’t get a vein on your foot, I’m going to take blood from your groin.”

I didn’t know how to respond, but I’m pretty sure my legs crossed of their own accord.

Let’s just say, the deed was done at the end of the day, with me forcing myself to think of the tundra and me internally singing “The Tundra Rap” from Boosh the whole time. I deserve a medal, as it's one of the many sacrifices I've made in my life all for the good of the world... or is it for medicine. ;-)


And that was only the first day. Just way too much to type. Overall, all my tests came out clear (or as clear as can be expected in my case).

World's Best Grandfather!

24 June 2007: On this day my grandfather (mum’s dad) left to go for his holiday. At about 85, my grandfather is my only surviving grand parent, and he’s surprising still quite active being at least 6FT. tall and always stands straighter than a tree. Probably b/c he’s a British Empire decorated WWII veteran and was in the army for like 30 years…


He is such a loving person, and he has never forgotten to send us four kids a birthday card every year wherever we may be in the world; he’s so great, he always sends our birthday cards about 2 weeks before our birthday just to make sure that we get it on time. I am just praying that my grandfather is safe and in good health for the next several months, and I hope he comes home safely after his holiday…

Saturday Family Night

23 June 2007 – On that Saturday we didn’t really have a Family Night b/c it was the day before my grandfather (mum’s dad) was leaving to go on his holiday, and some of mum’s relatives just showed up to say goodbye to my grandfather. It is so one of the damn buggers of life I loathe: when people just decide to show the day before you have to travel, especially the evening before and without calling before hand too! The guests finally left around 22:30…


Anyway, no one had even ate dinner b/c mum had barely started cooking when the guests showed up, so poor mum began frantically hurrying to finish making dinner for us, but it was well worth the wait. Mum finished making dinner around 00:30, and we all couldn’t wait to eat. Mum made Biryani: a rice dish with meat and potatoes; mum made it quite a lot more spicier than she usually makes any food, but it was really good nonetheless. Despite us all shedding tears from the spices, THE BIRYANI WAS BLOODY BRILLIANT!

Sorry

Dear Friends,




I’m so sorry adding any new posts in such a long time! However, there has been so much going on, and as time went on I procrastinated more in writing new posts.


Anyway, it’s better late than never. So, please bare with me b/c the next several posts are going to be quite long. I just have so much I want to update all of you about, and have lots of interesting news to tell.


Bye for now. CHEERS!




Regards,
The Red Haired Londoner