Yesterday, about 13:00 a photographer came to my home to take my photo for the interview I gave to Community Care Magazine on 3 September 2009.
I was expecting the same type of quick photo shoot from the photographer that came on Monday for the Ilford Recorder. However, he practically brought a whole photography studio with him including a Nikon D3, lots of lenses, external flashes, light umbrellas and more… It was so wicked!
After some tea and a chat, he took lots of photos of me: me using my new MacBook Pro 17", me in the dining room and me in the garden, et cetera. The guy seemed much more of a better professional, freelance photographer than the other guy who came on Monday; and this photographer was much more interesting and nicer too.
By the time he finished, it was about 16:00: Well over two hour of taking photos of me... I really enjoyed it and it was an amazing experience!
Stay tunes for the article soon…
Sunday 13 September 2009
Saturday 12 September 2009
First Week at Uni
On Monday (07-09-09) night me, dad and my two carers stuffed me and everything into my van and left to move into my accommodation at uni. Sadly, we left quite late from home at about 22:30 and arrived at 00:30, as we had some unforeseen troubles.
When we arrived, dad got out to find out where my room was going to be. Ten minutes later, he came back and said we had to drive around the other side of the uni where the porter’s lodge and my room was. As dad was taking some of my stuff into my room and I was getting out of the van w/ my carers, two fit girls looking like they’ve just come from a party walked up to me and asked if I’m moving in. How did they guess? Possibly, by the giant suitcase I had. I replied yes (trying not be sarcastic or say something stupid in front of them) and then walked off as they said, “Welcome to Surrey! We’ll see you tomorrow…” Indeed, I thought to myself. Nevertheless, by the time we put everything into my room and I finally got to bed it was like 02:30; and that night it was bloody freezing, but I couldn’t turn the heater on b/c it started smelling when I did, so I switched it off.
Promptly at 07:30 that morning (Tuesday, 8 September), an alarm started sounding very loudly and scared the hell out of me, as I suddenly woke up. It was the damn fire alarm! Brilliant. So, my dad and my carers quickly got me into my wheelchair, tossed the duvet on me and manually pushed me outside as I was so cold and in no state to drive myself. A few minutes later, the Estate Manager said it was just a fire drill and that I could back to my room, which after that it was really difficult to sleep anymore.
That being said, since I’m very tired I will just give you a quick breakdown of this week’s happenings:
Tuesday (8 September): In the morning, I met w/ the Disability Advisor and my new Learning Support Assistant (LSA) / note-taker, who is lovely and very experience as an LSA. Also, in the afternoon, my LSA and I met w/ my course tutor (the great guy who interviewed me and offered me a place) and course leader. After chatting for a bit, course tutor took us on a tour of where all my classes will be. It was fantastic!
Wednesday (9 September): Just took it easy. Dad and Sarah visited too, which was nice. Also, that night I watched England’s FIFA World Cup Qualifier against Croatia in the Student Union bar. Excellent game w/ a 5-1 win to England!
Thursday (10 September): From 11:00-15:00, I met w/ my LSA to show her how to use my computer and other DSA equipment. About 16:00, I then went for a walk into Farnham town centre, which is just breathtaking w/ every kind of shop you could ever need…
And Friday (10 September): Got up quite late and went for a walk around campus. Set off back for home around 15:30 and got home at 19:00 b/c all the motorways were completely blocked b/c there were so many accidents, but thankfully I got home okay.
Overall, I utterly love UCA Farnham and it’s such an amazing place! I cannot wait until freshers’ week next week and to get started on the course…
When we arrived, dad got out to find out where my room was going to be. Ten minutes later, he came back and said we had to drive around the other side of the uni where the porter’s lodge and my room was. As dad was taking some of my stuff into my room and I was getting out of the van w/ my carers, two fit girls looking like they’ve just come from a party walked up to me and asked if I’m moving in. How did they guess? Possibly, by the giant suitcase I had. I replied yes (trying not be sarcastic or say something stupid in front of them) and then walked off as they said, “Welcome to Surrey! We’ll see you tomorrow…” Indeed, I thought to myself. Nevertheless, by the time we put everything into my room and I finally got to bed it was like 02:30; and that night it was bloody freezing, but I couldn’t turn the heater on b/c it started smelling when I did, so I switched it off.
Promptly at 07:30 that morning (Tuesday, 8 September), an alarm started sounding very loudly and scared the hell out of me, as I suddenly woke up. It was the damn fire alarm! Brilliant. So, my dad and my carers quickly got me into my wheelchair, tossed the duvet on me and manually pushed me outside as I was so cold and in no state to drive myself. A few minutes later, the Estate Manager said it was just a fire drill and that I could back to my room, which after that it was really difficult to sleep anymore.
That being said, since I’m very tired I will just give you a quick breakdown of this week’s happenings:
Tuesday (8 September): In the morning, I met w/ the Disability Advisor and my new Learning Support Assistant (LSA) / note-taker, who is lovely and very experience as an LSA. Also, in the afternoon, my LSA and I met w/ my course tutor (the great guy who interviewed me and offered me a place) and course leader. After chatting for a bit, course tutor took us on a tour of where all my classes will be. It was fantastic!
Wednesday (9 September): Just took it easy. Dad and Sarah visited too, which was nice. Also, that night I watched England’s FIFA World Cup Qualifier against Croatia in the Student Union bar. Excellent game w/ a 5-1 win to England!
Thursday (10 September): From 11:00-15:00, I met w/ my LSA to show her how to use my computer and other DSA equipment. About 16:00, I then went for a walk into Farnham town centre, which is just breathtaking w/ every kind of shop you could ever need…
And Friday (10 September): Got up quite late and went for a walk around campus. Set off back for home around 15:30 and got home at 19:00 b/c all the motorways were completely blocked b/c there were so many accidents, but thankfully I got home okay.
Overall, I utterly love UCA Farnham and it’s such an amazing place! I cannot wait until freshers’ week next week and to get started on the course…
Friday 11 September 2009
Muscular Dystrophy Campaign National Conference
As the Muscular Dystrophy Campaign National Conference on 5 September was in Bradford (about 4 hours away from London) this year, we decided to drive up the day before on Friday to rest overnight in a hotel to be ready for the conference the next morning. Everyone (mum, dad, Sana and Sufian) came w/ me to Bradford except Sarah b/c she needed to take of Granddad since he is not that strong enough to travel all that way. We stayed at the Hilton Bradford Hotel, where the conference was being held.
Upon arrival in Bradford at about 15:00, we all just went to our rooms and fell on our beds b/c we were all really knackered. My room was very nice; it was the Executive Suite and had its own lounge w/ a dining table. After Dad got some dinner around 20:00, we all had an early night.
The next day, we got up around 07:30 and got ready quickly, and then ate some breakfast in the restaurant. About 10:00, we then headed downstairs to the conference room where everyone was registering. Once we registered and mingled for a bit, we went into the main conference room for the start of the National Conference.
The beginning presentations of the conference were a follows:
1) Welcome from Philip Butcher, Chief Executive
2) Keynote address by Terry Rooney, Member of Parliament for Bradford North – who had a very strong northern accent and was very funny.
3) Research – Paving the way for treatments by Dr. Marita Pohlschmidt, Director of Research
4) Accessible support and information by Lyn Inman, Director of Care and Support, and Abby Mardon, Director of Marketing and Communications
5) Tesco Charity of the Year – Pulling together by Mark Horrocks, Director of Fundraising
6) Campaigning – Join us in the fight for special healthcare by Robert Meadowcroft, Director of Policy and Operations
7) President’s Awards and Prize Draw by Sue Barker MBE, Charity President. This was the best part of the day where I received my award from Sue herself!
And 8) Close of morning session by Professor Martin Bobrow, Chair, Muscular Dystrophy Campaign
Once the presentations were done, it was time for lunch, which was quite nice. Following lunch, I attended the Trailblazers workshop as I am their London Regional Ambassador and I decided not to attend the second workshop b/c I was getting quite tired and we needed to head home. However, before we left I had a quick chat w/ Joe’s (the wonderful volunteer who worked at HQ for a few months) mum (a Regional Care Advisor in Leeds for the Muscular Dystrophy Campaign) and said my goodbyes to everyone at the charity.
All in all, it was a wonderful day and I cannot wait for next year’s conference!
Upon arrival in Bradford at about 15:00, we all just went to our rooms and fell on our beds b/c we were all really knackered. My room was very nice; it was the Executive Suite and had its own lounge w/ a dining table. After Dad got some dinner around 20:00, we all had an early night.
The next day, we got up around 07:30 and got ready quickly, and then ate some breakfast in the restaurant. About 10:00, we then headed downstairs to the conference room where everyone was registering. Once we registered and mingled for a bit, we went into the main conference room for the start of the National Conference.
The beginning presentations of the conference were a follows:
1) Welcome from Philip Butcher, Chief Executive
2) Keynote address by Terry Rooney, Member of Parliament for Bradford North – who had a very strong northern accent and was very funny.
3) Research – Paving the way for treatments by Dr. Marita Pohlschmidt, Director of Research
4) Accessible support and information by Lyn Inman, Director of Care and Support, and Abby Mardon, Director of Marketing and Communications
5) Tesco Charity of the Year – Pulling together by Mark Horrocks, Director of Fundraising
6) Campaigning – Join us in the fight for special healthcare by Robert Meadowcroft, Director of Policy and Operations
7) President’s Awards and Prize Draw by Sue Barker MBE, Charity President. This was the best part of the day where I received my award from Sue herself!
And 8) Close of morning session by Professor Martin Bobrow, Chair, Muscular Dystrophy Campaign
Once the presentations were done, it was time for lunch, which was quite nice. Following lunch, I attended the Trailblazers workshop as I am their London Regional Ambassador and I decided not to attend the second workshop b/c I was getting quite tired and we needed to head home. However, before we left I had a quick chat w/ Joe’s (the wonderful volunteer who worked at HQ for a few months) mum (a Regional Care Advisor in Leeds for the Muscular Dystrophy Campaign) and said my goodbyes to everyone at the charity.
All in all, it was a wonderful day and I cannot wait for next year’s conference!
Ilford Recorder Interview
When we made the trip to Bradford on Friday, 4 September to attend the Muscular Dystrophy Campaign National Conference, I received a phone call from the Ilford Recorder who interviewed me about receiving my President’s Award for 2009 Young Person of the Year. I discussed many things including my passion for volunteering.
After I was done, the guy said that he’d send a photographer on Monday to take my photo and when he came around on Monday morning (7-09-09) he just spent barely 10 minutes taking my photo in my garden in the rain; and that was that.
When I got that from uni tonight, I read the article in the Ilford Recorder from yesterday. It’s pretty good and a big thank you to Dave (my brilliant Connexions Advisor) for contacting them to call me. Though, they wrote the wrong uni that I’m attending; it’s actually University for the Creative Arts at Farnham not University of the Arts London. Well, that’s the media for you; they can’t ever get anything right…
Will try to upload it later.
After I was done, the guy said that he’d send a photographer on Monday to take my photo and when he came around on Monday morning (7-09-09) he just spent barely 10 minutes taking my photo in my garden in the rain; and that was that.
When I got that from uni tonight, I read the article in the Ilford Recorder from yesterday. It’s pretty good and a big thank you to Dave (my brilliant Connexions Advisor) for contacting them to call me. Though, they wrote the wrong uni that I’m attending; it’s actually University for the Creative Arts at Farnham not University of the Arts London. Well, that’s the media for you; they can’t ever get anything right…
Will try to upload it later.
Community Care Magazine Interview
On the evening of the 3 September after I got back from the office, I gave an interview to “Community Care” magazine about Social Care in the UK over the phone. I was talking to the reporter for over 30 minutes and I think it went quite well. She seemed somewhat impressed by what I said and asked if a photographer could visit me to take my photo as well. Will keep you posted of details.
Last Day at The Office
On Thursday last week (3 September), it was my last day at the Muscular Dystrophy Campaign HQ (Southwark, London) before I went off to uni…
I just wanted one final chance to say goodbye to all my friends at HQ before I got too busy at uni and needed to finish up a few things at the office. However, for a change Sarah drove me to the office and Sufian (who was my assistant for the day) came w/ me too.
Upon arrival, I helped Bobby (Trailblazers Project Manger) upload my videos of The Walton Report Launch on to Trailblazers website, which took most of the day. Thankfully, we finally got them to work and are now available to view on the “Video Blogs” part of our website.
Furthermore, I chatted everyone in the office and had a good time, as always – working hard of course.
Also, I was asked by the charity if I’d like to be interviewed about Social Care in the UK by “Community Care” magazine. I jumped at the opportunity because this is where my advertising empire starts!
Overall, I am sad that it was my last day at the office, but it’s not like I can’t work for them again. There hopefully is nothing that will stop me from continuing to work w/ the Muscular Dystrophy Campaign / Trailblazers for many years to come…
I just wanted one final chance to say goodbye to all my friends at HQ before I got too busy at uni and needed to finish up a few things at the office. However, for a change Sarah drove me to the office and Sufian (who was my assistant for the day) came w/ me too.
Upon arrival, I helped Bobby (Trailblazers Project Manger) upload my videos of The Walton Report Launch on to Trailblazers website, which took most of the day. Thankfully, we finally got them to work and are now available to view on the “Video Blogs” part of our website.
Furthermore, I chatted everyone in the office and had a good time, as always – working hard of course.
Also, I was asked by the charity if I’d like to be interviewed about Social Care in the UK by “Community Care” magazine. I jumped at the opportunity because this is where my advertising empire starts!
Overall, I am sad that it was my last day at the office, but it’s not like I can’t work for them again. There hopefully is nothing that will stop me from continuing to work w/ the Muscular Dystrophy Campaign / Trailblazers for many years to come…
Thursday 3 September 2009
Uni Update
10 Days 17 Hours, 59 Minutes and Counting until I start freshers’ week at uni… HURRAH!
That being said, I’m getting my key to my accommodation on Sunday morning and will be moving in to my ground floor penthouse at uni on Monday night. Wish me luck…
That being said, I’m getting my key to my accommodation on Sunday morning and will be moving in to my ground floor penthouse at uni on Monday night. Wish me luck…
Tuesday 1 September 2009
DSA Equipment
I’m so excited b/c today I received delivery of my new DSA equipment for uni that's mine to keep forever including a brand new MacBook Pro 17”, multifunction printer, Final Cut Studio 3, Adobe CS4 Design Premium and so much more. I cannot wait to start really using it… FANTASTICO!
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